- GF Update
- April 16th, 2015
So, this month marks one year since my Celiac dx, one year since I went completely, rigorously GF (and not just wheat-free, as I was before.)
As I have mentioned, the first, most drastic change I experienced was the end of FMS. One year later, I have seen even more improvement. For the first several months after going GF, my major aches from FMS were gone, but I would still have the sudden stabbing feelings and skin crawling feelings, and burning sensations. Those are gone now.
The only "FMS" symptom I have left is hypersensitivity, and that also happens to be a symptom of autism. Even it is much reduced, though.
What I have learned has led me to see FMS as a symptom, not a disease in itself.
Peripheral neuropathy is also gone. I haven't gone back to the neuro to get tested again, but I just don't have the problems I had before. No more numb feet, no more loss of foot control. And that happened relatively quickly.
What's amazing is that one year later I see even more improvement. Like, some things improved fast, some things take longer.
One thing I have noticed recently is that my immune system is calmer. Before going GF, my immune system had become very reactive. I had rashes almost every day. I had lots of skin irritation. My pso/dermatitis was very difficult to deal with, and it had been getting worse for years; at this time I have been free of flare-ups for months (I had a little flare about 3 months ago). These days I still get a small amount of irritation on my chest sometimes, but I am no longer covered in rashes. For several years I'd been getting rashes on my wrists, and those are gone. I'd always been "allergic" to my carpal tunnel braces; if they touched my skin, I got a rash on my hands and wrists. Now I can wear them without a rash.
I am the most even-tempered I've ever been. This may have to do with controlling my BG, too, but even aside from that, I feel different. I just feel so much less quick to anger than I have ever been. Most things, I feel now, just aren't worth getting upset over.
My digestion and related organs keep getting better. Late last summer I tested positive for ulcerative colitis, and although I haven't gone further with that (I haven't had a colonoscopy or gone to see a GI doc) I've noticed that my symptoms are less severe. I was tested because I was experiencing constant bloating, whenever I ate anything my abdomen would swell up. Now my abdomen is visibly smaller and softer. I do occasionally get bloat and etc, but for awhile last year it was every day. After I went totally GF, it actually got worse for awhile, but it has been getting better and better. (people with Celiac have IBD ten times the rate of people without Celiac disease, and anti-TTG antibodies are implicated in IBD. This SHOULD be more proof that Celiac does not only attack the small intestine, but doctors are not scientists.)
My dysautonomia is also improved. Now, when I am super-tired or sleep-deprived I will get episodes of dysautonomia, but otherwise I am mostly good! I am also much better at tolerating cold.
Unfortunately, I still have CFIDS. It isn't gone. I am intensely fatigued. But I am hoping that my improvement continues and that maybe someday I won't have CFIDS anymore.